sent in by
Christine Stopka

Mobility Training Among Children with Cerebral Palsy:
An Intricate Understanding of the Disorder and the Therapies Involved
BY SHIRLEY MINTON

Cerebral Palsy (CP) refers to disorders caused by an injury to the brain prior, during, or soon after birth. Cerebral means "anything in the head," and palsy refers to a lack of control of the muscles and joints in the body; thus Cerebral Palsy describes a medical condition affecting control of the muscles (2). It is due to a non-progressive, incurable brain abnormality, and exact symptoms can change overtime. The major damage occurs in the part of the brain controlling muscle tone, defined as the amount of resistance to muscle movement. The different muscle groups must have balanced tone in order for one to move effectively (7). The great news is that there are many therapy techniques, and if administered early in life will drastically increase a child's motor functioning.

The numerous symptoms that the child will experience range from mild to severe. Several symptoms are mental retardation, learning disabilities, seizures, difficulties with motor skills, and vision, hearing, and speech problems (2,6). Every child with CP has different symptoms, so therapy methods must be personalized for each individual patient. Since there is no 'absolute' treatment, medical professionals will have differing views on the proper therapies needed. It is crucial that a physician and a team of health care professionals work hand-in-hand to determine the appropriate course of treatment (3). The goal of each method of therapy must focus on the organic (physical fitness), neuromuscular (coordination), interpretive (cognitive), social, and emotional development of the child (8). Before planning a model of therapy, a medical professional must have a thorough knowledge of the disorder in order to decide which developmental objective has highest priority.

There are four types of CP: spastic, ataxic, athetoid, and mixed. Spastic is the most common, is recognized among 70-80% of all CP cases, and is often seen in premature babies (2,6). Normal muscle functioning is characterized by contraction and relaxation of agonist and antagonist muscles resulting in muscle tone and strength. In spastic CP, both muscle sets are highly active simultaneously and so become very stiff. This results in jerky movements when the rigid muscles are forced to stretch or function (5). The child has major difficulties when moving from one bodily position to another or releasing an object from their hand, called a 'clasp-knife' situation due to the non-coordination of muscles. If spastic CP is not treated properly, it will result in contractures of muscles due to chronic hypertonicity. This produces permanent disabilities and requires surgery (8,5). Spastic CP has 5 subcategories depending on the body part affected:

Most common is spastic diplegia. This condition is characterized by scissoring of the legs, with tight hips and leg muscles causing crossing at the knees and the legs to turn inward. The ataxic form of CP is characterized by weak muscles and low muscle tone. This disorder is recognizable in children if they are very unsteady or shaky. Problems will result with balance, depth perception, and difficulties with fine movements such as writing or turning a page (2,4). Approximately 10% of children with CP will experience this form (4).

The athetoid, or dyskinetic form of CP, can be recognized in 20% of individuals with CP. It affects the entire body and is the result of varying muscle tone, from too tight to too weak, often associated with uncontrolled, slow, writhing movements. Some of these involuntary features are turning, twisting, facial grimacing, and drooling. Individuals with this disorder will struggle with upright positions and walking, as well as muscles of the face and tongue experiencing difficulties with sucking, swallowing, and speech (6). Mixed CP occurs when 2 or more types of CP are present in a child. Improved diagnostic techniques are producing more evidence for mixed CP (2).

Medical scans, such as MRIs, CT scans, and ultrasound, can aid doctors in identifying brain abnormalities. These are normally diagnosed by the age of 5 as developmental problems become perceptible. This allows therapy to begin immediately upon birth or diagnosis. The brain imaging tests do not always expose the abnormality, so often diagnosis depends on the appearance of symptoms or early signs of CP (2,6). A doctor will evaluate the muscle tone, check for the existence of primitive reflexes that normally disappear at 6-12 months of age, and determine if the baby is favoring one side of their body before reaching 6 months (12 months is the norm). The doctor will also examine the baby's motor skills, searching for any difficulty with learning to roll over, sit, crawl, or walk (6).

Some newborns may exhibit major symptoms at birth, and others may not show signs for a long time. Professionals in the field must also pay attention to risk factors and common causes of CP to help anticipate the disorder when symptoms are not immediately existent. It is widely believed that lack of oxygen reaching the fetus during labor and delivery is the most prevalent cause of CP, but it only contributes to a small percentage. Some of the known causes of CP are infections during pregnancy (such as rubella or German measles), blood diseases such as Rh disease, bacterial and viral infections, sexually transmitted diseases, raised temperature of the mother, and when the mother abused drugs, alcohol, or smoking. Premature babies weighing less than 3 1/3 pounds are 30 times more likely to develop CP. If a newborn suffers severe jaundice, meningitis, or other birth defects are present, the risk also increases (2,6,7).

There is no cure for the disorder, but there are a variety of therapies that aid a child in achieving as much as he or she is capable of. The intention of physical therapy is to avoid muscle atrophy and contracture, while improving the motor skills of a child with CP. Therapists can use physical, occupational, speech, and language therapy. They may also employ biofeedback, medication to help control seizures and spasticity, and as a last resort surgery when the child has been living with extreme contractures that are unresponsive to the other means of therapy (2,3). The motor development of the child, or the organic and neuromuscular objectives of physical education, remains the primary focus of any therapy method for CP.

One very promising therapy method, entitled the MOVE Curriculum, was created at the Blair Learning Center in California in 1986. This therapy is centered on the idea of functioning in society. MOVE focuses on the technician providing support, motivation, and high expectations for the child to assist the development of functional motor skills. It was fashioned for a school environment, but can also be accomplished at home to help children with everyday tasks. It is a top-down, activity based curriculum focusing on the skills of standing, walking, and sitting, instead of developmental skills such as raising your head from a prone position, rolling over, and crawling.

The therapy team will select activities based on real outcomes, and will then incorporate instruction into these routinely occurring events. Equipment for physical support of the child is allowed, with the support being reduced as skills increase. This method changes lunchtime from a daily routine to an instructional opportunity; the child moves from sitting to standing, bears weight to wash hands, walks back to the table, and maintains balance to sit up-right in a chair to eat. The therapy team of the parents, family, and school administrators can also include cognitive, communication, and socialization goals, allowing for goals focusing on the needs of the individual.

MOVE was developed as a functional curriculum with learning occurring within meaningful activities. MOVE is meant to be utilized in natural environments so skills can be practiced where they will be used. It is a family centered, integrated therapy with the team planning, setting goals, and guiding a child with instruction and by example. And, most importantly, MOVE involves as much participation as is possible from the child during these essential activities. The activities taught are age-appropriate, increase independence and access to the community, and reduce personal care. This aspect is extremely significant when you consider the average lifetime cost of an individual with CP in 2003 was $921,000 greater than a person without a disability (7,9).

One example of mobility training using the MOVE Curriculum was documented in the magazine Teaching Exceptional Children. Breanna was a 4 year old girl who contracted meningitis and encephalitis at 3 1/2 weeks. This resulted in CP with high and low muscle tone and little strength. Surgery was highly recommended. Her mother, Trellis, decided to administer the ideas of MOVE for teaching Breanna walking skills. She used activities such as feeding the dogs and chickens, checking for eggs, walking to grandmother's house, and picking flowers in the yard. Breanna participated fully, and Trellis kept records of her progress.

In the first week, the mean number of steps Breanna took with her mother's assistance was 15, and her mean standing time was 45 seconds. Six months later Breanna could take 509 steps with her mother's assistance, and had a mean standing time of 4.02 minutes. Surgery is no longer being considered. Trellis quickly realized that creating more interesting activities motivated her daughter to participate. The instruction of fun gross motor skills, such as walking to a room to paint, had more beneficial results with Breanna as compared to discrete, boring motor skills being taught. She now has better balance and trunk control, as well as mobility, which will positively affect her relationships with others.

MOVE is most influential if every person involved with the training believes in the child and pushes him or her to improve. Trellis at first was very frustrated and remarked to her husband: "I don't want to sit here and hold Breanna for the rest of her life. I want her to get up and walk; I want her to be independent (9)." Shortly after Breanna's birth Trellis had been informed by her doctor that Breanna would never walk; now she is very capable of walking, and it's due to this program (9).

Cerebral Palsy often will not hinder a child from attending school, making friends, or doing things they enjoy; however, they will need assistance to accomplish these things, with some requiring more help than others. Computers and wheelchairs are great tools to help with communication and movement, but more than anything children with CP want to fit in just like other kids their age. This can happen if more people have knowledge of CP and the therapies that can greatly advance a child's quality of life. People need to understand that CP largely affects motor skills, often leaving children with high potential to grow intellectually. The virtue of patience is crucial when establishing a bond with a child who has CP. The bond formed will be greatly appreciated and exponentially beneficial for both of you (1).


references

  1. Bachrach, Steven, MD. (2003). Cerebral palsy. Kid’s health for kids.
    Retrieved September 27, 2005, From http://www.kidshealth.org/kid/health_problems/brain/cerebral_palsy.html
  2. Bright tots: cerebral palsy. (n.d.). Retrieved September 27, 2005, From http://brighttots.com/Cerebral_Palsy.html.
  3. Cerebral palsy treatment. Retrieved September 27, 2005, From http://www.cerebralpalsyfyi.com/cp_therapy_and_treatment.html.
  4. Cerebral palsy types. (2000). Retrieved September 27, 2005, From http://www.cerebralpalsyfyi.com/cerebral_palsy_types.html.
  5. Children with cerebral palsy. Retrieved September 27, 2005, From http://www.indianchild.com/CerebralPalsy/spastic-cerebral-palsy.htm
  6. March of dimes cerebral palsy. (2005). Retrieved September 27, 2005, From
    http://www.marchofdimes.com/professionals/681_1208.asp (outdated 01/28/08).
  7. National center on birth defects and developmental disabilities, cerebral palsy. (2004) Retrieved September 27, 2005, From
    http://www.cdc.gov/ncbddd/dd/ddcp.htm
  8. Stopka, C. (3rd ed.).(1997). Applied special physical education and exercise therapy (pp. 3-6, 38). Boston, MA: Pearson.
  9. Whinnery, K. W., & Barnes, S. (2002). Mobility training using the MOVE curriculum. Teaching Exceptional Children, 34(3), 44-50.

 

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