A BRIEF OVERVIEW OF CEREBRAL PALSY AND IMPLICATIONS FOR PHYSICAL ACTIVITY
Written by: April Gagnon
Growing up can be tough with even the
easiest of circumstances. As children
get older, they play and interact with
other children, making friends along
the way. Children do not, however, all
have the same experiences with growing
up in their school or home environment.
Some children have a tougher time than
others to interact or make friends.
Children with disabilities have characteristically
been in this category. It is not their
fault, however, that people look at
them in this way. Children with cerebral
palsy are in this special group of people.
Each child should have the same opportunities
as their so-called “normal”
agemates such as to going to school,
playing sports, and making friends.
Cerebral
palsy (CP) is a “non-progressive,
non-contagious condition that causes
physical disability in human development”
(1). This means that the disease does
not get worse as the child gets older,
and that the disease cannot be spread
to other people by means of coughing,
sneezing, breathing on them, or even
with direct contact. This disorder is
usually discovered at the time of birth
or shortly thereafter, usually up to
age three. Cerebral palsy affects the
area of the brain called the cerebellum,
which is characterized for its important
role in sensory perception and motor
control. Many children who are diagnosed
as having CP have either had brain damage
to the motor control centers of the
brain (the cerebellum) during pregnancy,
which account for about 75% of all cases,
or from brain trauma after birth, such
as an early car accident, which accounts
for about 15% of the other cases (1).
There
is no cure for cerebral palsy as of
yet, but researchers are working on
finding out if there is a specific genetic
component responsible for this disease.
If a gene is determined to be partly
responsible, geneticists can then try
to isolate it, and figure out what can
be done to stop this from happening
to more children in the future. Researchers,
however, have a long way to go before
any significant data can be determined
from their findings so far.
There are four major classifications
of cerebral palsy: spastic,
athetoid/dyskinetic,
ataxic,
and mixed.
Each classification represents a different
area of the brain that was damaged.
Spastic cerebral palsy is the most common
out of the four types. It occurs in
about 70% to 80% of all cases. This
type is characterized by the muscles
being hypertonic, meaning that they
are oversensitive to stimuli and react
more quickly. This type of CP usually
has damage in the motor cortex of the
brain. There are three main types of
spastic CP as well: spastic
hemiplegia, meaning that only one
side of the body is affected; diplegia,
only the lower extremities are affected;
and quadriplegia,
all four limbs are affected equally.
Most people with spastic diplegia, even
though only their legs are affected,
do eventually walk. Spastic quadriplegia
is the most severe form out of these
three subtypes because it is characterized
with more secondary symptoms such as
high blood pressure, urinary infections,
heart attacks, and strokes (1).
Ataxia
is the second type of cerebral palsy.
This is usually caused by damage to
the cerebellum, which is responsible
for most motor functions. Ataxia is
much less common than spastic CP, only
occurring in about 10% of all cases.
People with this type of CP have motor
problems such as with writing, typing,
and especially with balance and walking
activities. It is also common for them
to have “difficulty with visual
and/or auditory processing of objects”
(1).
Athetoid,
or dyskinetic, CP is when a person
has mixed muscle tone, meaning that
some people have hypertonia (too much
muscle tone) and other have hypotonia
(not enough muscle tone). This type
of CP is characterized by damage to
the extrapyramidal motor system and
the basal ganglia, occurring in about
25% of all cases. These people typically
have problems with sitting in an upright
position, holding steady, and walking.
Many also have involuntary motions.
Mixed cerebral palsy is just a combination
of these types already mentioned, and
can be any combination (1).
Cerebral palsy is a fairly common disease
in children, occurring in about two
out of 1000 births, and has a higher
rate in males than females. Approximately
10,000 infants and babies are diagnosed
with CP each year, many of them being
diagnosed by the time they enter preschool
(1). Not a lot of information is known
about the direct causes of how children
develop cerebral palsy, but researchers
can hypothesize what they think are
contributing factors in many of the
cases. They have found that “premature,
very small babies who don’t cry
in the first five minutes after delivery,
who need to be on a ventilator for over
four weeks, and who has bleeding in
the brain” are the most at risk
for developing the disease (2). This
is a particularly narrow description
in that most small premature babies
born have over a 90% chance of NOT having
cerebral palsy (2).
CP can also become an issue after birth,
even if the birthing process was completely
normal. There are many factors that
may contribute to the disease presenting
itself in early childhood. Other causes
that may come up later are: toxins such
as
lead poisoning, shaken
baby syndrome, near drowning,
encephalitis,
meningitis,
and asphyxia.
The three most common forms of asphyxia
that may contribute to children developing
CP are choking on a foreign object,
poisoning, and near drowning. Asphyxia
causes less oxygen to be transported
to the brain, depriving it of its essential
nutrients to function properly, therefore
damage to the brain may be permanent
(1).
Cerebral palsy may be difficult to
diagnose because each child develops
differently. However, children do follow
a common, general pattern in their development,
so this has been used to help with some
of the debate. The most common
way of diagnosing CP is through the
normal developmental milestones, such
as reaching for toys, sitting, and walking.
Each of these is based on certain motor
functions, which is the most prevalent
problem with people with cerebral palsy.
When a physician is looking for a diagnosis,
he is usually looking for delays in
these milestones. They will look at
how long the delay has been, and look
to see if there are any other factors
that may be contributing to physical
characteristics such as abnormal muscle
tone, muscle movement, and reflexes.
Most children can be diagnosed by the
time they reach 18 months of age. It
is a common misconception that CP can
be diagnosed through using x-rays or
blood tests. This is false, but doctors
often order these tests to rule out
other diseases and disorders to best
get a diagnosis that fits the patient
(2).
There are some common signs and symptoms
that are characteristic with most types
of cerebral palsy. All types have abnormal
muscle tone, posture, reflexes, and
motor development and coordination problems.
Many children also have problems with
walking and balance, and are commonly
seen scissor walking (where the knees
come in and cross) or toe walking. They
often have irregular posture, either
being very floppy or very stiff. Some
children have symptoms that are less
common such as birth defects like a
spinal curvature, a small jawbone, or
a small head. Cerebral palsy also has
some secondary conditions that may occur
in children such as: seizures, epilepsy,
speech or communication disorders, eating
problems, sensory impairments, mental
retardation, learning disabilities,
or behavioral disorders (1).
In one journal article I read, a study
was done to find out about the quality
of life of people with cerebral palsy.
There is a common misconception that
people with this disease are not happy
with themselves, and therefore have
a lower quality of life. But when a
survey was done of 500 children aged
eight to twelve with CP in several European
countries, it was found that they view
life with the same quality as their
agemates without the disease. It was
also noted that the children viewed
the same things important as their agemates
without the disease, emphasizing more
internal qualities than focusing on
their physical limitations (3).
Another study reported findings that
were focused on the physical aspects
of the disease rather than the emotional
aspects. This study grouped children
with cerebral palsy by the level of
their physical disabilities, and compared
levels of physical activity participation
over time. Level I corresponds to people
who can walk with no restrictions and
only have limitations in advanced gross
motor activities. These childrens' results
were comparable to children without
musculoskeletal limitations and higher
than individuals with mild disabilities,
which means they participated just as
much over time as children with no disabilities.
Children who were grouped in levels
II through V could not perform most
of the personal care or daily mobility
activities, and they needed physical
assistance throughout the day. These
groups of children were resulted to
have the least amount of time with physical
activity participation over the study
period (4).
CP itself does not worsen as a person
ages, meaning that the brain will stay
the same for a person’s entire
lifespan. The symptoms, however commonly
worsen over time. People diagnosed with
cerebral palsy are more likely to have
a learning disability as well as physical
limitations, but this does not affect
their intellect or IQ scores. Most of
the people with cerebral palsy are also
expected to have a normal life expectancy
(1). Sadly though, the employment rate
for adults with CP is only about 40%
(5). This number has been on the rise
though because of new laws that protect
people with disabilities from discrimination.
Since
there is no cure for cerebral palsy,
people with this disease must get treatment
for their various symptoms. In general,
the earlier the treatment starts in
childhood, the better the outcome of
the child, and the better the chance
they will be able to overcome their
developmental disabilities or learn
to compensate in other ways. There are
many areas of treatment that can help
these young individuals such as physical,
occupational, and speech therapy; and
drugs to control seizures, alleviate
pain, and relax muscle spasms.
Many such treatments have proven to
be effective with helping people with
cerebral palsy. Swimming seems to be
the universal helping agent with many
diseases. Children with CP can float
in the water on tubes, and learn to
hold their heads up slowly, without
the weight of gravity making it much
heavier when on dry land. These children
can start off with small exercises to
build up muscle tone in the pool, and
then advance to more sophisticated ones
on dry land.
These children can also play a variety
of sports just like their agemates can
without physical or developmental disabilities.
They can play sports such as soccer,
tennis, bowling, and tee ball. All of
these sports, however, must be adapted
so that they will tend to the children’s
disabilities and make it more functional
for them to participate.
In soccer, children with cerebral palsy
who cannot walk and are in wheelchairs
can play on a hard surface such as a
basketball court, and “kick”
around a large ball (instead of a small
soccer ball) with their wheelchairs.
Others can set up goals on each side
of the basketball court so they can
score.
For tennis, children with cerebral
palsy that have gross motor function
disabilities can have a special racket
that can be fastened with Velcro to
their hand/arm, so that they can hit
the ball over the net. A bigger ball
might be used in this sport as well
to make it easier for the child to hit
with only a limited range of motion.
This can also be adapted so children
in wheelchairs can play as well.
Bowling can be modified in that a bowling
ball ramp can be used. When the child
is in a wheelchair or can get up and
walk on his/her own, this is a useful
tool. The child can just push the ball
from the ramp and get a strike! Tee
ball can also be modified for children
with cerebral palsy in that the bases
can be put closer together, a bigger
ball can be used, and the bat may be
strapped to the child’s hand just
like a tennis racket. Each of the adaptations
can help children with cerebral palsy
have fun with other kids and play sports,
just like “regular” kids
want to do.
“It is important to separate
the disorder from the person, and not
make assumptions about what life must
be like for that child or their family”
(3). This is a very important part of
accepting people for who they are, and
not what kind of disabilities they may
have. Every child wants to be treated
with the same respect and patience they
deserve. Treating children with a developmental
disability such as cerebral palsy normally
is vital to their growth and development
throughout life. If they are treated
equally among other children their age,
they will have a better outlook on life,
and will appreciate who they are more
than what they can or cannot do. Cerebral
palsy is not this terrible disease that
has to be “dealt” with,
but rather a minor setback in life that
may be overcome in the mind, as long
as one thinks positively and keeps a
positive outlook on life.
references
|